caught up

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Every light shadow looks like her out of the corner of my eye – a pillow, a blanket, a sunbeam. The pain of losing this companion is a loss that grieves with every small reminder of her absence. She’s not sleeping on the couch, not laying on my dirty laundry, not loitering in the bathroom every time someone wants to use it.

I just cannot imagine or believe her to be absent, after she’s been so present in my every moment. After Vin goes to work, she’s with me. After the kids go to bed, she’s with me. After everyone is asleep and I’m the only one awake – I’m praying, and she’s with me. She’s always been with me.

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Just a peaceful evening…

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I’m bored. Mama, I need a cuddle.

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Excuse me, I said I need a cuddle. Move the book.

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Yes, you. I’m talking to you. Hi. Snuggle? Chin rub?

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Ohhhh, so much better. See? We both needed that.

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This girl became one of my closest friends – which isn’t an insult to the incredible human friends in our lives, but an indication of how uncommonly wonderful she is.

I wake up at night and pray, and she’s right there next to my arm. I come upstairs for a breather at intervals throughout the day, and she’s next to my writing table. I hunker down next to her, and pray. After I’ve tucked the kids into bed, she curls up on my lap while I read the Bible, and I pray.

I do the dishes, and she hides under the open dishwasher door like it’s her personal canopy or fort. And I’m praying. Bossing kids usually, too, but also…praying.

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A dear friend reassured me that this is not weird. She said some people have prayer shawls; I have a prayer cat. No biggie.

She was breathing deeply, her face tucked into a corner between my open Bible and the dirty flannel she’d been sleeping on.

She lost her vision the afternoon before, walking in circles, bumping into things. Sleeping with her eyes partly open. I just watched her breathe – her side rising and falling, asleep facing the window. I picked up white clouds of her fur from her staggered wanderings the night before.

Sometimes she pawed her front legs like she was kneading something, and the paw that I touched gripped my finger and stopped, while her other paw kept seeking.

We listened to worship music and I read the Psalms – this was no time for Leviticus – and I had other books to read also, but none of them were a part of this time, right here, in pain and closeness and quiet. I had laundry to do and clothes to change, but I didn’t want to miss her leaving. And yet I already missed her…the dearest, littlest best friend.

We prepared the kids at bedtime and cried with them, answered questions, explained as much as we knew, and prayed. And tucked them in. And checked on her. And she was still pawing, but with all four legs now, slowly, like she was running to the Lion who loves her.

We went back downstairs to the couch and prayed, just Vin and me. Usually she’s there when we pray, too, and we talked about all the little things we missed her doing – waiting for us on the stairs when we pull in the driveway, biting magnets off the fridge, sleeping shamelessly on the warm kitchen counter when the dishwasher is running.

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And as He spoke, He no longer looked to them like a lion; but the things that began to happen after that were so great and beautiful that I cannot write them. 

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And for us this the end of all the stories, and we can most truly say that they all lived happily ever after. But for them it was only the beginning of the real story.

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All their life in this world and all their adventures in Narnia had only been the cover and the title page: now at last they were beginning Chapter One of the Great Story which no one on earth has read: which goes on forever: in which every chapter is better than the one before.

– C.S. Lewis, The Last Battle

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We prayed, and went back upstairs to check on her.

And she was warm, but just gone…caught up with the Lion who loves her, and us.

meant for this: finding purpose between the ho-hum and the agony

In the middle of a word, the point of my pen broke and tore right through the paper. My favorite pen – just a cheap one, but it has the perfect grip, the right color, and the enchanting ability to make spider-scrawl legible. Despite the miles of perfectly wonderful writing left in it, it was rendered useless because the tip of it broke off and left it so sharp that it bled ink and ripped everything it touched.

meant for this: finding purpose between the ho-hum and the agony

Probably because I’m stubborn (whatever) I determined to resurrect it with salvaged parts from an expendable pen. Turns out, it also takes one patient husband and three pairs of pliers, but fifteen minutes later the pen was back in action. My fingers were covered in dark blue splotches and I thought, “Oh…Jo would be proud.”

We’ve been reading Little Women, all of us, aloud, on the weekends.

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Last weekend we were six hundred pages into the book, and Vince handed it to me when we got to that certain chapter. You know the one.

And I was fine – amazed myself, really – until I read this:

So the spring days came and went, the sky grew clearer, the earth greener, the flowers were up fair and early, and the birds came back in time to say good-by –

– and my voice escaped me. Nothing would come out, and I handed to book back to Vince.

Afton looked back and forth at us. “Time to put the book in the freezer?” He’s eight, and I swear he’s never seen an episode of Friends in his life.

We made it, though. Vince and I had to take turns through the rest of the chapter.

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We’ve been taking turns a lot lately. I was in the depths of despair recently and felt completely walled-in over never leaving the house and never talking in person to humans who are taller than me, except for an hour on Sundays before and after the service.

I was blue, sharp, and feeling overused. My top blew off and I realized I’d been bleeding on my kids, who were starting to tear into each other.

Poor Jo! These were dark days for her, for something like despair came over her when she thought of spending all her life in that quiet house, devoted to humdrum cares, a few poor little pleasures, and the duty that never seemed to grow any easier. “I can’t do it. I wasn’t meant for a life like this, and I know I shall break away and do something desperate if somebody don’t come and help me,” she said to herself, when her first efforts failed, and she fell into the moody, miserable state of mind which often comes when strong wills have to yield to the inevitable.

– Louisa May Alcott, Little Women

Aside from church, I hadn’t been out of the house in weeks. I hadn’t left the house on my own in months. And reclusive homebody introvert or not, I needed to breathe. I wasn’t meant for a life like this.

The objects which bore us, or the persons who bore us, appear to wear a bald place in the mind, and thought turns from them with sick aversion.

– Charlotte Mason, Home Education

We took drastic measures, though they probably sound silly to you. For three days in a row we took turns, and Vince sent me out of the house.

I went to the library by myself and browsed every section without a single interruption. I went to an appointment. I went to the post office. Once I ran errands with only half of our kids – the three who hadn’t been busted for lying that day – and I experienced the perspective that only comes when you discover that what you once thought was overwhelming is now quiet relief.

I started to remember what these days are meant for.

And once I met a friend for coffee. She is moving and goodbye is coming soon. We talked deeply about our past, our present, and our plans for the future, including at least one arranged marriage between our children.

In three hours we cried about eleven times, but I drove home almost fully resuscitated.

Meaninglessness inhibits fullness of life and is therefore equivalent to illness. Meaning makes a great many things endurable – perhaps everything….

– Clyde Kilby

The ho-hum and the agony diminished in the fresh air and I came home ready to finish this chapter, determined not to be rendered useless from a little breaking.

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Miles of perfectly good ink are left in us, and we were meant for this. We work so well together because he’s a patient husband. And because I’m stubborn…probably.

alphabet soup

alphabet soup: yielding control and simplifying while homeschooling/preschooling special needs kids

There are no regimented minute-by-minute agendas here. Just a loose schedule with firm standards, attempting to run a tight ship in choppy waters. It’s a little nuts.

I’m learning a lot about not being in control…about doing things differently than we’re used to.

It’s not an overnight process for me; there’s lots of trial and error for this detail-oriented INTJ. As other things speed up and complicate in life, other things have had to slow down and simplify…and my conversion from Type A to Type B is still in the highly experimental beta stage. 

alphabet soup: yielding control and simplifying while homeschooling/preschooling special needs kids

But there’s progress: I broke up with Martha Stewart. Her photos are gorgeous, her style is impressive, but I think meals categorized as “quick and simple dinners” should require less than 35 steps, 2 food processors, and a therapist. 

alphabet soup: yielding control and simplifying while homeschooling/preschooling special needs kids

When I actually make myself a lunch instead of just microwaving leftovers, it’s pretty simple fare. Veggies, toast, an egg…nothing fancy. But I crowd the mushrooms and can only take a couple of photos of the process before I make a mess and wreck the egg, thereby reminding myself why I write about peace in sentence fragments and stick to making coffee, leaving the world of food blogging to the capable hands of those who have more patience than I do.

alphabet soup: yielding control and simplifying while homeschooling/preschooling special needs kids

We do school differently now. After teaching our first three kids to read by age six, teaching preschool to our new 8-year-olds who are learning letters and sounds and shapes with our four-year-old is new territory for me.

Writing was a trying business to Charley, who seemed to have no natural power over a pen, but in whose hand every pen appeared to become perversely animated, and to go wrong and crooked, and to stop, and splash, and sidle into corners, like a saddle-donkey.

– Charles Dickens, Bleak House

alphabet soup: yielding control and simplifying while homeschooling/preschooling special needs kids alphabet soup: yielding control and simplifying while homeschooling/preschooling special needs kids

The milestones are different, the challenges are different, and my involvement with them is different than it has been with any of our other kids.

Sensory issues. Institutional autism. Trauma. Attachment issues. Fetal alcohol spectrum.

alphabet soup: yielding control and simplifying while homeschooling/preschooling special needs kidsIMG_5421ship at harborphoto courtesy of Unchained

Or, commonly abbreviated: SPD, IA, PTSD, RAD, and FAS. It’s quite a cocktail, made more complex by the fact that some conditions are typically dealt with in ways that are counter-productive to others. For example, with attachment issues, you do ABC, and never, ever do XYZ…but with FAS, you usually do XYZ because ABC doesn’t even apply. Awesome.

And for a child who has both, and more? Fortunately, we have 20 more letters of the alphabet to tinker with in trial and error. Nothing fancy, try not to make a mess, and for crying out loud, don’t worry about wrecking the egg. Priorities.

Which means I’m letting go. Teaching Andrey and Reagan in the normal way usually becomes a mutinous game of manipulation – if I point to a red circle and ask them what it is, they’re just as likely to give me the wrong answer on purpose (“yellow square”) as they are to give me the right answer on accident.

 So preschool, for now, is sneaky. 

It looks like me teaching Chamberlain while they are playing nearby or looking at a book.

In reality though, they’re eavesdropping. They’re watching closely, listening in, often pretending not to. And they’re learning, in spite of the alphabet soup of diagnoses they could be labelled with

Sometimes they join us to play with letters and numbers and such. I’m learning to haul up the anchor and move on after just a few minutes while they’re still cooperating – if I don’t, three seconds later there is testing, manipulation, and mutiny, and we’re sucked into the vortex again.

Keep it short, keep it happy, keep it simple. And then change course, before it’s too late.  

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We write letters on little sticky notes. We write letters on the windows with dry erase markers, and then cover them with the matching sticky notes.

We write big letters in glue, and cover them with tiny pieces of torn paper (learning letters + sensory play + motor skills = big win).

We color and scribble and fill up notebooks with lines and curves that often don’t make sense. And assessment doesn’t come in questions and answers – it comes in the turning of the tables, when we eavesdrop on their play and conversations with each other.

Do they know colors? Heck yes – just listen to them argue over lego pieces. Can they count? Depends on who’s asking – but listening to them play Hide and Seek reveals quite a bit. There’s progress, and the simplicity keeps me sane.

Of her childhood, Helen says herself that, save for a few impressions, “the shadows of the prison-house” enveloped it. But there were always roses, and she had the sense of smell; and there was love – but she was not loving then. When she was seven Miss Sullivan came to her. This lady had herself been blind for some years…

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It is not too much to say that imprisoned and desolate child entered upon such a large inheritance of thought and knowledge, of gladness and vision, as few of us of the seeing and hearing world attain to.

Like all great discoveries, this, of a soul, was in all its steps marked by simplicity.

– Charlotte Mason, vol. 1, Home Education

I need Him to remind me often about why they choose to stay in the dark, and why He chose us to be their family. This lady had herself been blind for some years…

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Learning is not merely the two-way street of give and take between teacher and student anymore.

It’s an ocean to navigate, and the familiar constellations are upside down in this new hemisphere, along with new ones we’ve never seen before. We yield to the Captain who calms the storm…and there’s fresh coffee in the galley.