splash on me: light-yoked truth for friends with special needs kids

We walked down the driveway in sunshine to piano lessons a few doors down. I held Finn’s hand and we both wore flip flops (or frip fwops, as he says), and the dirt path was scattered with puddles left over from the rain that morning.

splash on me: light-yoked truth for friends with special needs kids

I told him not to jump in them so he wouldn’t splash me. But of course he jumped in them a little. Probably on accident, mostly, just couldn’t help himself. He is a magnet to muddy water; by proximity, I tend to get muddy sometimes, too.

Recently I was on the phone with Grandma, and she told about some friends of hers who just moved somewhere in our neighborhood. We haven’t met them yet because I’m antisocial it’s hard to meet people when you avoid things like introductions. And our family isn’t, you know, the typical suburban white-picket fence type.

But she assured me they’re great people. “They’re younger, maybe middle aged,” she said. “Well, I guess they’re in their early 30’s. About your age.”

“I’m 41, Grandma.”

“What?! Where did the last ten years go?”

“Heck if I know.” I often wonder the same thing. Where did the time go? How did this happen? Our baby, that mud-magnet, turned three last week.

But if I think about it, I know it where much of the time went: the long adoption process, thousands of hours spent researching special needs and looking for help, going to appointments, praying for answers and wisdom and healing, and learning to communicate to our kids and our community in a way that walks the line between brutal truth and compassionate grace.

I scrolled social media at the end of a rough day last week and immediately regretted it. Satan must’ve been running Instagram that night because it was full of memes like this:

“The true evidence of someone who knows they are loved is that they love well.”

…And…

“The child is largely what the home has made him.”

Those were just a couple of examples. But they were a stab in the gut that night, after a kid repeatedly lied to me even when caught red handed.

For those of us who have kids with special needs, mental health issues, and/or pasts out of our control, these quotes come with a swift, hissing attack of condemnation:

He shuns everyone and pushes us away, so he must not know he’s loved…what are we doing wrong?

 He has a zero trust level and continues to sneak and lie, but he is what the home has made him…wow, have we failed.

Looking back, I believe a lot of what we experienced as judgmentalism or simply indifference grew out of a profound misunderstanding of and lack of experience with mental illness. And sadly, this seems to persist despite the greater availability of information today.

– Sally Clarkson, Different

Those smug sayings might mean well, but they don’t encourage parents of children who compulsively make destructive choices due to trauma or mental illness.

They hold absolutely no inspiration or truth for parents who bleed themselves dry trying to show love to a child who returns those efforts with barbs and snarls.

And they do nothing to strengthen parents of children whose affection swings hot and cold, who hang on to the slightest offense and carry the heaviest of yokes, refusing to see goodness around them or to grow through personal responsibility, or who cannot admit moderation in their view of themselves and others instead of fluctuating between one extreme of believing certain people are infallible, to the other extreme of utter disdain when those same people make an honest mistake and fall off the pedestal they never asked to be put on.

Those parents don’t need to be told that the home is responsible for how their children behave. They’re already doing whatever it takes. Those parents need compassion, respect, and a night out.

Let’s try this saying instead: If your hands aren’t willing to get dirty, your mouth should hesitate to spout off advice or expertise.

Until you have had a child with a severe mental or emotional difference – OCD, autism, clinical depression, PTSD, or others – you just don’t know how constant the disruption can be every day, all the time. So it’s all too easy to assume that the attitudes and outbursts that characterize life with these mysterious children are just the result of a bad attitude, a lack of training, or poor parenting in general.

To complicate matters, children who are undisciplined, unloved, abused, or traumatized can exhibit some of the same attributes and behaviors, so diagnosing children’s issues is a complex pursuit. In my mind, that’s even more reason to extend grace wherever possible and strive for understanding instead of making assumptions.

– Sally Clarkson, Different

 So, parents of special needs kids, listen up: We have to remember – and sometimes remind each other – that our home, our families, our parenting, and our children do not fit the easy, over-simplified cookie cutter mold. This peace is for you. Not those other pieces of veiled criticism and condemnation. Those pieces are not for you.

Those inspirational graphics and pep talks might be a self-satisfied pat on the back for perfect families with perfect kids, but I don’t know any of those. I know hard working, tear-spilling, question-asking families who already wonder if they’re doing enough – or if they will ever be enough – for their children’s needs.

They are struggling through parenting children with learning disabilities, or walking through grief and loss. Some of them are navigating what to do with a child with mental illness or addiction. And others are pushing through major life transitions, like launching kids out of the home and into adulthood, and they are so aware of their own past mistakes that they’re grateful their children have come out alive and thriving at all. Not all of our friends have kids with special needs, but they do all have real kids with real stuff – fears, attitudes, struggles. None of them always have styled hair, impeccable manners, and collars buttoned to the chin.

None of our close friends are perfect parents with perfect children. If they were, we wouldn’t be friends; our life is too messy. We’ve splashed on each other over dinners and coffee, during hikes, in courthouses, in living room prayer, through late night texts and phone calls. We speak light-filled, light-yoked truth to each other without condemnation and offer perspective that we can’t always give to ourselves.

These are the ones we listen to at the end of the hard days. They, too, have dirt under their fingernails, and they aren’t afraid to come within arm’s reach or get splashed on a little. Those are our people.

____________

Need more encouragement on adoptive parenting? Here you go, a whole page of resources and posts.

routine maintenance: when life is under construction

Fourteen weeks. Past most of the morning sickness, still soooper tired off and on, and always hungry. As I type this, a salad bowl the size of a small bathtub is next to my laptop.

Vince has been home for the last seven of those weeks and we’re (slowly) getting into a routine. I’m starting to get some work in. Not as much as I’d like, but now I’m more productive than the cats, who just nap on piles of laundry all day and chase after loose Nerf darts.

routine maintenance: when life is under construction

I’ve been plowing (ahem – “plowing” should be loosely interpreted) through my book to get it ready for the editor in two weeks. Vin has been working on his website and it’s entertaining in a sadistic sort of way, watching him struggle through the aggravation of navigating WordPress’s bleep-bloop room like I’ve done for years; now he yells at his computer as much as I do. It’s sort of like those contraction and labor simulator belts that let husbands in on the joy of pain in childbirth.

The kids still do school a few hours a day because we’re fun parents like that and don’t like reviewing how to add and subtract in the fall. Finnegan roams around with his own agenda, playing with a pair of tongs he pilfered from the kitchen. Or drawing on himself and the floor with dry erase marker. Or licking the solidified residue at the bottom of Vince’s ice cream dish from the night before.

But at least he’s moved past the phase of dumping popcorn kernels onto the kitchen floor, or trying to put Reagan’s barrettes in his hair, or walking down the hallway with no pants, but wearing someone’s pink slipper on one foot and a blue slipper on the other.

Toddlers are awesome. I still can’t believe we’re doing this all over again.

I love routines, but they’re hard to fight for during seasons like this, and it’s going to be like this for a while. Life happens – a new baby, a major illness, a move, a new nap schedule, a new school or work schedule – and our structure is shaken and sifted. Sometimes I am shaken and sifted with it.

House-wise in this season, we’re used to the noise of traffic, trains, and planes from JBER flying over us. And now we’re getting acquainted with summer noises, like every night around 10 or 11pm – it’s still bright as day then – when someone buzzes around the trails on a machine that sounds like a hybrid between a moped and a weedwhacker.

Added to that, our stretch of the highway is under construction right now, with all the rumbling, beeping, digging, and spraying, and if you listen closely, there’s probably also an undertone of children whining and exasperated drivers using expletives at various decibel levels.

For example, when I tried to leave our neighborhood Wednesday night: My blinker was blinking left, I was in the lane that turns left, and the way left was clear since traffic was blocked in both directions, but the flagger sent me north toward Willow instead. This is a good time to let you know that I still need Jesus.

I buttonhooked at the first opportunity and came back south, and within a quarter mile a line of cones appeared out of nowhere dividing the two lanes in front of me – no flagger, no signs, no indication of what the cones were there for or which lane to take. Being lazy, I stayed in my own lane, which is a good thing because around the bend in two-tenths of a mile, the other lane was closed off with cones. Whiskey-Tango-Fill-in-the-blank. Anyone in it would have to stop on the highway, get out of their vehicle, and creatively rearrange cones on behalf of the DOT in order to escape the maze and continue on their way.

Passing a mile of vehicles headed north at a standstill, I determined to take the scenic route home. It worked until I was within sight of our house – I could see the eave of our roof from where we were parked on the highway.

I know the construction is for maintenance. The disruption is to a good purpose, just like the life events that rock the routines I lean on, sifting and stretching me. The truth is, I always need Jesus – and sometimes He sees fit to shake my complacency and remind me how much.

Plenty of things are still the same and may never change. Finnegan, at almost any time of day, can be found eating oatmeal and drinking his tea from a sippy cup, flaunting the British side of his heritage in all its glory. Meanwhile, also at almost any time of day, bigger kids loiter in the kitchen like it’s some recreational arena, getting in the way of my genuine, desperate American need for bacon and coffee.

And at almost any time of night, Alaska is still awake and making noise, though we don’t even notice most of it anymore.

Except for the other night. Around 12:30 when we were climbing into bed, we heard the familiar high-pitched, cranking buzz going down the road.

“The guy riding the weedwhacker is running late tonight,” I said.

Vince turned off the light. “Probably got stuck in construction traffic.”

how we do it all

The sun blazed with enthusiasm this morning, but by the afternoon storm clouds rolled over and we had rain pouring off the roof in sheets, and hail pounded the windows on the north side of the house. Alaska was showing off, trying to do it all in the same day. But after about 30 minutes it wore itself out and cleared again, like a toddler after tantrum…or, like a mama whose caffeine-driven spurt of productivity has worn off, and she collapses on the couch for a breather.

how we do it all

It is a year of surprises. The night before I sent the last newsletter, when Vince had only three days left at the business he’d worked for 21 years, we found out we are pregnant.

No, nope, we didn’t see that coming at all. To say we were shocked would be a gross understatement.

But yes, in case you were wondering, we know how this happens, and we like it, but this is still, ahem, another miracle that must’ve involved supernatural intervention, like the one we had a few years ago. You know, the adorable blond one named Finnegan.

So in that newsletter when God had been teaching me for weeks about stretching our tent pegs, I wrote it thinking He was mostly talking specifically to me about writing and business. But when I proofread it before sending it off and He said, You know how to do this, you’ve done it before. You’ve just never seen it like this, I knew He was talking about this gift, which, I’ll be honest, I did not feel ready for.

But Vince has been home for three weeks, and he hit the ground running – putting in a lawn, redoing the kitchen floor, finishing his book, working on cover design, and starting to convert the former garage to a rec room, since the Stagecoach couldn’t fit in it anyway.

I, on the other hand, hit the ground and sunk in up to my waist with all day morning sickness and fatigue, taking two naps a day and stumbling around the house in a nauseous haze. My deadlines are not my own; they are not the priority right now. Right now is for resting and getting through this first trimester, and I’m reconciled to be behind schedule by at least a month or two because we are unexpectedly ahead with a baby.

The night after I sent the newsletter, I sat in the bottom of the shower and poured it all out to God, ready to be honest with Him and myself. I didn’t know how we were going to do this. And, since we’re being honest, I still don’t know how we are going to do this.

But I know that we are. Because really, do we ever know how we’re going to do it? I don’t think so.

…Our false self demands a formula before he’ll engage; he wants a guarantee of success, and mister, you aren’t going to get one. So there comes a time in a man’s life when he’s got to break away from all that and head off into the unknown with God. This is a vital part of our journey and if we balk here, the journey ends.

– John Eldredge, Wild at Heart

I don’t know how I did everything when I was in my early twenties and overwhelmed with one baby – that hard transition we go through when suddenly our life is not our own. Did you? I don’t know how I did everything in the transition from one child to two anymore than I know how I did it when we went from two to three, to four, to six when we adopted two at once and life went completely upside down.

I remember doing the math when I was pregnant with Iree and I braced myself, assuming that two kids would be twice the work. And it ended up being easier than I expected. And then I thought, Well, heck, the transition from one to two was so much easier than I expected that, hey, going from two kids to three kids ought to be a piece of cake. Right? But, au contraire! Not for me, at least. That was a rude shock.

Because there is no formula.

But there is a ridiculously impossible rule of opposites that goes something like this: Kid #2 will be the opposite of Kid #1 (so far, so good), and then Kid #3 will be the opposite of both of them (wait, what?), and every succeeding child will still be another contradicting paradox, resulting in a parenting dynamic that looks like a huge polygon with lines connecting all of its vertices, like so.

This is why we were all mostly perfect parents when we only had one kid to figure out, and then as our families grew, it felt like we were being promoted to a new level of discovering our own ineptitude.

We want answers to fix everything and everyone, and He reminds us that we don’t have those answers, and we are confounded.

Naturally, we are inclined to be so mathematical and calculating that we look upon uncertainty as a bad thing…Certainty is the mark of the common-sense life; gracious uncertainty is the mark of the spiritual life. To be certain of God means that we are uncertain in all our ways, we do not know what a day may bring forth. This is generally said with a sigh of sadness; it should rather be an expression of breathless expectation.

– Oswald Chambers, My Utmost for His Highest

It is not what we expected. Our floor is in a constant state of looking like a scene from Home Alone – where it isn’t padded with Nerf darts, it is carpeted with giant 24-piece puzzles.

It is the glory of God to conceal things, but the glory of kings is to search things out.

– Proverbs 25:2, ESV

One of the phrases I hear most (aside from Wow, you sure have your hands full, ugh, so help me) is “I don’t know how you do it.” I don’t know how I do it either. But I don’t know how any of us do it. I don’t think we’re supposed to know. If we knew, we’d take the credit, and it doesn’t belong to us.

That credit goes to the Day Maker who has always done it all and brings miracles even when we don’t think to ask for them, and He will keep doing it.