Category Archives: special needs

wide spaces: finding grace in the overwhelm

Posted on by October 26, 2023

I drove home from an appointment with Reagan’s team at our homeschool, leaves skipping across the road while the Nitty Gritty Dirt Band sang about fishing in the dark. Just me, no distractions, no kids arguing in the back – a good time to think some deep thoughts.

It was our annual special ed meeting, a newish development for us but also one I dreaded last year. But this year I feel like a grown up about it, which means I’ve reached a new level of maturity that borders on reckless indifference. Reagan is almost eighteen and that means nothing to her development, care, or education, but it changes a lot of things legally, initiating a whole new level of well-meaning bureaucracy in our lives.

wide spaces: finding grace in the overwhelm

In the meeting we discussed goals for math, reading, and writing. Math, for instance: The team suggested getting Reagan a watch to help her practice telling time, and we talked about what that would accomplish.

“Nothing,” I told them, “other than a broken watch, because she will get it in the water, pick at its mechanisms, and destroy it in within two weeks. We might as well find a twenty dollar bill and have the fun of lighting it on fire.” (I know, fun at parties, remember?) She doesn’t understand the concepts of seconds, minutes, and hours, anyway. She does understand days (usually), months (sometimes), and parts of the day, like evening and morning, with variable accuracy. Even on the days when she remembers how to tell time, it means nothing to her, and it was bought at the cost of weeks of frustration and often disobedience.

Money? Same thing. She knows what coins are worth, but that information is meaningless because she doesn’t understand buying, selling, earning, or spending. There are no hooks to hang that knowledge on. Yes, we take her to the store and go through the motions with her, but that’s all it is – going through motions. Her mind doesn’t understand the concepts of what is really occurring.

I flipped the blinker and turned right, wondering how many years you can teach first grade math to the same child. One reason we homeschool is to keep our kids from wasting time with busywork, but for eleven years that’s all it seems like most of her math assignments have been for her. But we’ve persisted, hoping something would finally click, or she would be healed, or we would see some bigger progress.

So how do we get more basic than the basics? Are we just pushing these things to make ourselves feel better? These are the questions I’m pondering lately. Have we wasted all this time, trying to teach her useless things? I know, I hear you; it hasn’t really been wasted. God never wastes anything. But just give me a minute so I can overthink this.

I don’t want to give up hope for her healing. I want to live in the green light and yet at the same time work with her where she’s at – where she’s still at, where she might always be at. I don’t want our days to be long, frustrating exercises in futility, checking off boxes when those boxes don’t apply to her.

I want to find the right boxes, where she clicks perfectly and thrives. And yes, we are an out-of-the-box family, I don’t have a problem with coloring outside the lines. But I’m tired of fishing in the dark, firing blind. We need structure and outlines and achievable goalposts to reach for, because things have been so “too much” and yet often also “not enough.”

There were four of us in the meeting and everyone was on our side; there was no combativeness or judgment, praise God. But there are always stark reminders that these other women, kind as they are, don’t fully grasp Reagan’s challenges. One mentioned vocational rehab as an option, and I reminded her that Reagan is cognitively anywhere from two to six years old, and you would not send a preschooler to vocational rehab.

“Right,” she nodded. I appreciate her agreement and understanding, but I’m so tired of being the only one that keeps these things in mind as we live with her limitations. I don’t want to be the naysayer all the time. I don’t want to naysay at all. But here we are: The freedom to do anything, but limits everywhere.

I read this about limits recently:

…What nuns, hermits, and students do is facilitated rather than hindered by the confines of the formal structures they inhabit; because those structures constrain freedom…they enable movements in a defined space. If the moves you can perform are prescribed and limited – if, for example, every line of your poem must have ten syllables and rhyme according to a predetermined pattern – each move can carry a precise significance.

– Stanley Fish, How to Write a Sentence

…and this makes sense to me. I need the focus provided by parameters and limits within the overwhelm.

So eleven years into this, we are reevaluating how we structure her days, and praying again about how to make them the most fruitful. And this, at least, is normal for every kid I’ve homeschooled: Tweaking and adjusting is normal, frequent, and to be expected.

We don’t want to push things for the sake of pushing them, or because they’re what’s “supposed” to happen, or because it’s what she ought to be able to do in a perfect world without FAS and other traumas. I’m all done with the exercise in futility, and yet I’m also not ready to admit she can’t be healed.

Which means I’m here in the middle, realizing for the brazillionth time that I can’t force healing, growth, or learning to happen. We need His grace; it has to be His work here. And we need to find other ways to engage and grow her that won’t be a constant source of aggravation and strife for all of us.

I heave a long sigh, and the Lord corrects me. Hey Love, you do not carry the weight of the world. I do. Agree with Me. So I do, mostly…I think 99.5 percent, at least…and I remind myself He’s doing great things. Working on our behalf. Making our efforts mean something. Giving us wisdom and discernment.

Every step forward for each of us is pure grace.

But still, I haven’t had a real vacation (the kind without kids, appointments, or interviews) in 22 years and there’s this 3-inch binder for Reagan’s paperwork and future planning that I need to look through this evening. Or at least, one of these evenings. Or at least by late November.

And I want nothing to do with it; I want to fling it out the window. I want to be Knightley, napping in the rocking chair.

So, maturity…yeah, I dunno if I’m getting anywhere with that in my own heart, either. The further we get it in this, the more I come up against my own selfishness, my own disappointments, my own imperfections and limits. My own need for grace.

I have been overwhelmed with overwhelm, and am longing for some…I don’t even know. Peace. Space. Victory. Rest.

And then a few weeks ago I read this, about the Lord leading the Israelites out of slavery and into a good land:

Then the Lord said, “I have surely seen the affliction of my people who are in Egypt and have heard their cry because of their taskmasters. I know their sufferings, and I have come down to deliver them out of the hand of the Egyptians and to bring them up out of that land to a good and broad land, a land flowing with milk and honey, to the place of the Canaanites, the Hittites, the Amorites, the Perizzites, the Hivites, and the Jebusites.”

– Exodus 3:7-8

Did you see that? Three big things are happening here. One: The Lord sees their struggle. That’s super great, we need to be seen and heard and known.

And then B: He comes to deliver them to a good place, which is filled with hope and relief and promise. I can just see that good and broad land, with rolling fields, gardens, and a little stream cutting across a cluster of woods.

But then, C: In the same breath, before He even finishes the sentence, He says the place is absolutely teeming with horrible, idolatrous enemies they have to conquer.

Record scratch. Wait a second.

But I think this is where I’ve been living. I mean, maybe there’s a pattern here: We get to a new breakthrough, we start to see light ahead, and boom – new challenge, new overwhelm, new enemies to conquer. In fact, I’m almost positive I’ve written about this before, a little over a year ago. So why are we here again?

Because it’s the next level. The Lord delivers from overwhelm, but He also delivers us into overwhelm. Because He’s doing something in the midst of it.

I will rejoice and be glad in your steadfast love,
    because you have seen my affliction;
    you have known the distress of my soul,
and you have not delivered me into the hand of the enemy;
   you have set my feet in a broad place.

– Psalm 31:7-8

We can keep pushing Reagan through math workbooks, and enjoy the predictability of knowing what we’re getting into because it’s what we’ve always gotten. Or we can toss them aside and look at a wide, new land of almost limitless, overwhelming other options. Really, it’s not that different from the deliberations public schooling parents face when they first switch to homeschool.

My friend said this the other day about her daughter:

“We never had to do more than say ‘yes’ and just be there for her and love her. As long as we were faithful to do that, He did all the rest. We could’ve just rested in that instead of all the tears and worry.”

And I know this in my head but I have had to learn it over and over – which really, does that mean I’ve ever learned it? – because I have also spent many days in long, frustrating futility with tears and worry. I’ve wasted a lot of time with that useless busywork. But I’m hoping that this time the concept of grace will stick, that it will click, because I need healing and progress, too.

Learning that I can trust Him in all of it makes all the difference. Right, I’ve said that a million times here, and I think I’ve believed it 99.5 percent of the time, even. But probably because it’s taken this long to have hooks to hang that knowledge on, I’m finally learning about grace and trusting Him in new ways – like, I’m finally feeling it in my bones, and understanding that we are bound by love, and therefore, free.

If the Lord delights in us, he will bring us into this land and give it to us, a land that flows with milk and honey. Only do not rebel against the Lord. And do not fear the people of the land, for they are bread for us. Their protection is removed from them, and the Lord is with us; do not fear them.

– Numbers 14:8-9

I can almost grasp it right here – this shift that has been so slippery, so hard to hang on to, but it’s starting to make sense and feel real: Because if I can trust Him, then the future brings more joy and rest. Because if every step forward is His grace and not dependent on my perfection or ability, then the obstacles ahead are bread for us. Instead of the expectation of more limits and more confusion and more lack or dread or any other thing not of Him, there’s something that looks a little like reckless indifference – but what it really is, is freedom. It’s the next level.

It looks like rolling fields, and cultivated gardens, and a stream running free in all the directions He sends it.

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handle with care: the Kingdom’s response to grief & pain

Posted on by August 24, 2023

I walked down the hallway this morning toward the meeting room where we have weekly prayer. My friend whose husband died last Saturday was there, already being hugged by another friend, so I waited my turn. We prayed for her, and rejoiced for him – I’ve mentioned him to you before – and then we moved on to interceding for our church, community, nation, and world.

handle with care: the Kingdom's response to grief and pain

The world needs intercession. Maybe that’s why we’re noticing more alarms; there’s smoke everywhere. Something is definitely spiking in the atmosphere. More warfare, more attack – but also, more coming together, more standing back to back. More hugging and generosity. More looking out for each other. And we need to look out for each other.

One of my friends is losing her hair and facing hard choices about cancer treatment, and another is on alert for wildfire evacuations while her husband recovers from a chainsaw accident. We have close friends dealing with extreme financial hardship and health challenges. All around, we are fragile and broken, healing and raw, on edge and in His hands, because there’s no other place to run for safety.

In our family, we got Kavanagh’s cast off last week just in time for more medical appointments for Andrey as we navigate the medical merry-go-round of specialists with varying degrees of knowing what they are doing, and equally varying degrees of how much they charge for their particular blend of experimentation and expertise.

So far, we know there’s a CT scan and then a surgery coming up. We are praying for healing and expecting mighty things, while simultaneously calling down fire upon the racket of Big Pharma and looking for the right ENT specialist. Someone who doesn’t charge $1200 an hour to those who pay out of pocket would be greeeeeat.

Also, since I’m giving you the big family update, guardianship proceedings are coming up – we finished the courses, and the first round of paperwork goes to the Palmer Courthouse this week. And my heart is…better…I’m pretty sure it’s better, at least…about it.

One of the things that helped was, shockingly, the courses themselves. While most guardianship cases in Alaska seem to be for elderly people who need assistance, there was one case study that sounded a lot like both Andrey and Reagan. Even better, the mother in that case also felt frustrated at the need to go through a legal process (because, GAHHHH) just to simply keep caring for her child as she had been doing all along, which has been my main beef, too. But in a move that shows the government can do a few things right (grin) even the state of Alaska acknowledges those valid feelings, and explained the need for guardianship in a way that was gentle and on the family’s side. Repeatedly, they described how this is a delicate process.

And suddenly I felt the relief of not having to plow new ground. I am so tired of plowing new ground. Here, finally, I saw that someone has walked this path who wears shoes like mine, and the trail has already been somewhat cleared. A weight lifted off me.

We are fragile, broken and healing. We all need to be handled with care.

Walking gently is imperative right now, because the bull in the china shop doesn’t have eyes or ears to recognize the needs around them. These are days to move cautiously and deliberately; it’s hard to cultivate sensitivity and discernment about the times without a little stillness.

“I did not send the prophets, yet they ran; I did not speak to them, yet they prophesied.

But if they had stood in my council, then they would have proclaimed my words to my people, and they would have turned them from their evil way, and from the evil of their deeds.”

– Jeremiah 23:21-22

This is why we listen for His words and then pray for boldness to share them in the ways He has gifted and positioned us. It’s easy to make excuses when we’re hurting and grieving, but those things don’t let us off the hook of praying and abiding. You know what happens when we pray and abide? He tells us stuff. And often, He tell us to share about it.

Let me make a huge understatement: The Church hasn’t always been great at this.

The Church is filled with people who really aren’t familiar with the love of God, and it’s shown by how we puff ourselves up at the expense of each other. Love builds up, but knowledge puffs up – and we already know that wounded and hurting people tend to wound and hurt other people. But Kingdom culture changes that, because in Kingdom culture, we abide and surrender. Rather than festering inward, those wounds and pain draw us outward and give us wisdom to recognize similar wounds and pain in others. Oh friend, I recognize those shoes you’re wearing. They look like mine, too.

When we are tender and fragile, we naturally lean toward the friend who wields words and truth gently, who holds wisdom humbly because they won it through pain without allowing bitterness to fester. A heart that is ready to be comforted runs to the friend who carries compassion forged through experience.

– Risk the Ocean: An Adoptive Mom’s Memoir on Sinking and Sanctification

Have you ever broken something, fixed it, and then broke it again because you weren’t careful with it? We used to have a baby gate like this – actually, we’ve had a million things like this, but the baby gate is a strong memory because we had to teach our kids to use it gently. If it was treated with respect, it worked perfectly to keep our toddler from trespassing upstairs. But if someone just swung it open or slammed it shut, it would break again.

Because things are more fragile where they’ve already been fractured. We are, too.

So we are walking in more weakness, but also more strength. We are abiding and watchful, listening and interceding. Pain and hardship haven’t won the day; God has and is continuing to take everything the enemy throws at us and turning it for our good, for His glory.

For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.

– 2 Corinthians 12:10

We are wiser and healthier. More strategic, more mature. Less prone to falling for the lies and manipulations of the enemy. Less likely to act out in puffing insecurity toward those around us who are also hurting, and more equipped to create an atmosphere of healing.

We can know things for ourselves but still need to hear them from others. We can encourage each other with truth and fight each other’s darkness, but still need others to shine that truth into us on the days that fall pitch black. We stumble and get our hands and knees in the mud, and a fellow traveler says, Here, I’ll hold your lantern for you while you get back up again. There you are. Bravely now, onward.

– Risk the Ocean: An Adoptive Mom’s Memoir on Sinking and Sanctification

We’re not looking down on those dealing with affliction and darkness because we remember our own pain and fumbling. Grief is not a competition.

But when we allow the Lord to use it to make us more like Him – the One who was acquainted with grief – it is a qualifier.

The wisdom and maturity wrought from it empowers us to lead others back into wholeness. Our brokenness helps break the path ahead, and plow the ground for others. And as we go there, we are bringing the culture with us.

with book: introducing the one I always meant to write

Posted on by August 15, 2025

Long gone are the days when I would sit here, hitting these keys until 3 am. But not long gone – in fact, extremely present and frequently of late – are the hours of overtime on the couch after the kids are in bed.

with book: introducing the one I always meant to write

I have forgotten to eat dinner, left bowls of my beloved popcorn untouched, neglected normal writing schedules, and overlooked watering the garden. But this book is alllllmost done in spite of computer disasters and apps that eat landing pages and several unplanned medical appointments including two trips to urgent care in the last month…one for a kid who broke his arm and one for a bigger kid with a cyst who needs oral surgery again.

And we’re not quite done yet because, just for fun, we’re considering a new book distributor at the last minute.

But hey, friends…let me introduce you to the baby I’ve been pregnant with for eleven years.

“It burned me from within. It quickened; I was with book, as a woman is with child.”

– C.S. Lewis, Till We Have Faces

risk the ocean: an adoptive mom's memoir of sinking and sanctification

This is a memoir of my post-adoption journey through the chaos of mothering and homeschooling six kids in the midst of multiple special needs and my subsequent depression and sanctification as I learned to surrender. If you read Upside Down and Oh My Soul and wondered what was really going on behind the scenes, it’s in this book.

Because we never know how far our dreams and callings will take us when we start pursuing them. The initial rose-colored ideas only get us ankle-deep along the shore, digging our toes in warm sand, before reality sinks in and we’re up to our ears in work we didn’t anticipate, opposition from out of nowhere, obstacles we don’t know how to solve, and expenses that threaten to suck us under.

At some point, we have to decide if it’s really worth the sacrifice to turn our vision into reality. And if it’s a daydream, maybe it’s not worth it. But if it’s a calling – a mission – then it’s a different story.

This, friends, is a different story.

In 2010, Vince and I started a process we didn’t know how to finish. We had four kids, a three-bedroom house, and two old vehicles. We lived frugally with one main income, one micro-business, and a little in savings. And God called us to adopt two children with special needs, bringing them home two years later to freedom, a new homeland, and our family. For good, forever.

And then hell broke loose.

We didn’t know what it would cost, or what it would take out of us. We didn’t know what we would gain, or how it would change us. We didn’t know how the story would end.

And I hate to spoil it for you, but years later I still don’t know how the story ends. We still live this story every day. But here’s what I’ve learned, and am continuing to learn, in the process:

We can talk about following our dreams all we want, but our calling is only achieved through giving up what feels safe and comfortable. It involves scary things like obedience and surrender, and letting go of our preconceived notions and penchant for control. We have to move out of the comfort zone and do hard things. We have to risk the ocean if we want to follow Him as He walks on water.

When we move out of that comfort zone, God may allow us to discover more about our own brokenness than we ever wanted to know. This is especially true when our dreams and callings entail facing someone else’s trauma in close proximity.

And I won’t lie to you – in our own weakness and brokenness, sometimes we look at the waves and can’t take it anymore, and we go under, to be refined like a rock worn smooth in the agitation of violent surf.

The sanctifying process might chafe you raw, until you think you can’t take anymore.

Doesn’t that sound fun? Still want to sign up?

The thing about obeying God in these big, scary callings is that it’s not about what we’re doing at all. It’s about what He ends up doing in us. Because as we follow Him in one task, He will lead us to another, and another, and another. And we discover that we’re not just called to a mission, but to a character of obedience – like children who watch what their Father is doing, and then they do it, too.

So Jesus said to them, “Truly, truly, I say to you, the Son can do nothing of his own accord, but only what he sees the Father doing. For whatever the Father does, that the Son does likewise.”

– John 5:19

It turns out that achieving a dream is not about tying things up in the pretty bow we always expect, because redemption and achievement rarely look like a Hallmark Christmas movie.

They usually look more like God moving in deep and lasting triumph in spite of everything the enemy throws at us.

Risk the Ocean is available here. Thanks so much for supporting our family. xo

Risk the Ocean: An Adoptive Mom's Memoir of Sinking and Sanctification "Vulnerably shares the blood, sweat, and tear that real sacrificial love requires." "Integrity beams up and out of every page."